Things are getting even better now. He is fully awake and alert and is feeding from a bottle now. He's got the sucking, swallowing, breathing thing down. Its great to see him awake and looking around at things. We've got his crib in the NICU decked out wiht a mobile, several toys, and a big coloring book page his big bro did last night. All the docs and nurses are amazed at his progress and we are also shocked. Things keep looking up. He will be in the NICU for a few more days so they can keep an eye on him and be sure his med levels are stable.
He's only on phenobarbatol (sp?) to control the seizures and takes that by mouth now so he only has his monitors and a feeding tube in his nose. The feeding tube will come out once they see he can regularly get his whole bottle (2 oz) down by mouth.
We couldn't be happier, but now that it looks like he'll be coming home the wife and I are freaking out a little. We know the docs won't let him leave if he's not ready, but I know the first couple nights we won't sleep just to be sure he keeps breathing. He had one little episode yesterday after a physical therapy session when he stopped breathing, but started right up when the nurse rubbed his back. We chalked that up to him being tuckered out since it was the most activity he's had in his short life. Today he did even more and has gone on like a champ.
Again I can't thank you all enough for the support. We are lucky to have many people all over the world sending thoughts and prayers to us.
PS Sorry to ramble on so long.